| Abstract | Celijakija je bolest tankog crijeva koja uzrokuje doživotno nepodnošenje glutena. Ovaj tip bolesti je stečen i doživotan a poznati su i različiti tipovi celijakije kao što su tipična, atipična, tiha i latentna. Sami simptomi celijakije mogu biti klasični crijevni simptomi koji se odnose na poremećaje u probavi te izvancrijevni simptomi. Kod djece se prvi simptomi najčešće očituju između 7. i 24. mjeseca života. Nakon uočenih simptoma celijakije slijedi dijagnosticiranje bolesti te liječenje. Jedini način da se ova bolest tretira i izliječi je konzumiranje bezglutenske prehrane što podrazumijeva izbjegavanje namirnica koje u sebi sadrže gluten. Iz tog razloga vrlo je važno da djeca koja sudjeluju u odgojno-obrazovnom procesu imaju pristup bezglutenskoj prehrani. Zbog svega navedenog smanjuje se kvaliteta života djece oboljele od celijakije. Specifičnost ove bolesti sprječava djecu u bezbrižnom obavljanju svakodnevnih aktivnosti, putovanju i boravku na javnim mjestima. Moguća je pojava i socijalne isključenosti zbog nerazumijevanja okoline. Uz smanjenu kvalitetu života djece smanjuje se i kvaliteta života njihove obitelji. Roditelji imaju važnu ulogu u životu oboljele djece kao njihova podrška i vodilja kroz sam postupak liječenja. Oni također imaju i važnu ulogu u komunikaciji s odgojiteljima i ostalim stručnim osobljem koji sudjeluje u odgojno-obrazovnom procesu. Odgojitelj ima važnu ulogu u životu djece oboljele od celijakije s obzirom na količinu vremena koju odgojitelj provodi s djetetom, on mora stvoriti poticajno i sigurno okruženje. Celijakija se i dalje smatra kao nedovoljno prepoznat javnozdravstveni problem te kao nepoznanica mnogim osobama. Od iznimne je važnosti educirati roditelje, odgojitelje, oboljelu djecu te njihovu okolinu kroz različite radionice, predavanja, edukativne priručnike i slično. U samu edukaciju su se uključili i mnogi dječji vrtići te udruge kako bi podigle svjesnost o ovoj bolesti. |
| Abstract (english) | Celiac disease is a disease of the small intestine that causes lifelong gluten intolerance. This type of disease is acquired and lifelong, and different types of celiac disease are known, such as typical, atypical, silent, and latent. Celiac symptoms themselves can be classic intestinal symptoms related to digestive disorders and extraintestinal symptoms. In children, the first symptoms usually appear between 7 and 24 months of age. After the symptoms of celiac disease are observed, the disease is diagnosed and treated. The only way to treat and cure this disease is to eat a gluten-free diet, which means avoiding foods that contain gluten. For this reason, children participating in the educational process must have access to a gluten-free diet. Because of all of the above, the quality of life of children with celiac disease decreases. The specificity of this disease prevents children from carefree performing daily activities, traveling, and staying in public places. The appearance of social exclusion due to misunderstanding of the environment is also possible. Along with the reduced quality of life of children, the quality of life of their families also decreases. Parents play an important role in the lives of sick children as their support and guidance throughout the treatment process itself. They also play an important role in communication with educators and other professional staff who participate in the educational process. The educator has an important role in the life of children with celiac disease, considering the amount of time the educator spends with the child, he must create a stimulating and safe environment. Celiac disease is still considered an insufficiently recognized public health problem and is unknown to many people. It is extremely important to educate parents, educators, sick children, and their environment through various workshops, lectures, educational manuals, and the like. Many kindergartens and associations joined the education itself to raise awareness about this disease. |
